Make the right decision for her new beginning!

Four years and three months of age I can’t believe I’m discussing school placement. I remember when all I prayed for was for her to live. You see, I was told when she was five days old that she wouldn’t live to see her first birth! Another prayer of mines for the past four years was for her to be healed of her many illnesses and health issues! She has overcome so many obstacles in her four years of living. Now I’m praying that the State of Maryland recognizes that no public school can be modified to fit her needs and that the Baer school can’t service her needs neither. I’ve went on many visits to schools throughout Baltimore and the only school that I feel can service all of her needs is The Maryland School for the Deaf. So now I continuously pray that the State does the right thing and grant her the referral that is needed for her to attend The Maryland School for the Deaf and not focus on the cost of her attending this private school! Please do what’s in the best interest of my little girl and not make me fight for what’s right for her; I’ve been fighting her whole life for what’s right for her and I’m tired. Please allow this school approval to go smoothly!

Behavioral Issues and Medications Just Don’t Work For Her

I’ve been battling these issues with my little butterfly’s behavior since June of 2009. It started with hand biting. Then it progressed to hair pulling, head banging, and knee biting.  She was once enrolled in a day behavior program at KKI twice a week for five months; to no avail! She was placed on several different medications by her behavioral psychiatrist at KKI over the past year; to no avail! I purchased arm and leg immobilizers to prevent her from self inflecting injuries which have limited her ability to be independent and movable!  After numerous visits to different specialist no one can give me a reason why she is experiencing such great distress. I believe it’s because of her lack of ability to communicate with others her wants, needs, and dislikes……….. by the way she is deaf and has a vision impairment! I’m still trusting in the Lord to heal her and give her the ability to communicate with others in a positive manner by using ASL (sign language).

Focus On The Good

After overcoming many difficult health problems in her four years of life she just cannot seem to overcome this hurdle regarding her behavioral disorder. The car ride to the medical day care wasn’t as bad as it's been in the past. YES! I only had to pull over once. With the help of her arm immobilizers and some Gerber snacks I was able to make her happy and continue my drive to the day care! Now off to work.

LOOKING BACK ON OUR MANY BLESSINGS

Four years ago, my little butterfly was in the NICU fighting for her life. Today, I rejoice because of the many blessings over the past four years. Now my little butterfly is living strong without the uses of a C-Pap machine, Pulse Oximeter, Oxygen tank, and Gastrostomy Tube for feedings. We still have many trying days but I trust that better days are ahead as I look back over her life. FAITH!